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veganhotheadI can't remember how to do a cut. I apologize. Suggestions are welcome.
Hello friends,
I hope you’re all enjoying what’s left of the summer.
I’m writing to you all at once because there is something I need to address. A few of you are already aware of it but you may not have seen me or heard from me for a long time. I need you to know it’s not because I don’t like you or I don’t want to go to your fun parties or talk to you. It’s because I’ve been ill.
I have Fibromyalgia. I’ve had it for about six years but the symptoms have become really severe over the past two and I was only diagnosed last year. This was after years of trying to get doctors to listen.
I didn’t want to make this letter too long. This link explains what fibromyalgia is and what people with fibro have to deal with better than I can right now. Not everything written applies to me but most of it does. Please take a moment to read it.
http://thepathbeyond.com/blog/?p=17
I will briefly explain what this means for me personally.
I get “fibro fog,” which makes concentrating and remembering things extremely difficult. Sometimes I have trouble remembering simple words. This is very bad, especially if you’re a writer. So I can’t write like I used to.
I also can’t do yoga like I used to or do cardio kickboxing because overexertion makes my condition worse.
Being in pain all the time really saps your energy, to the point where simple chores like vacuuming or going to the doctor can wear me out. Sometimes I’m too exhausted to speak.
This makes it hard to socialize or do things like attend demonstrations. For me, this is the hardest part of fibro. I miss out on a lot of great stuff and often it’s like I have no life at all.
I don’t look sick. I look tired a lot, sometimes I can’t hide the dark circles under my eyes but otherwise fibromyalgia is what’s referred to as an “invisible illness,” which makes it hard to be taken seriously.
Since I was diagnosed I’ve been slowly learning how to navigate this illness and managing it to the best of my ability. I’ve had to stop working and go on ODSP because I simply can’t work anymore. I’m currently attending a fibro group at Toronto Rehab, which is helping me deal with things.
I’m sorry I didn’t let you all know sooner but it’s been hard to deal with and it’s even harder to explain, especially when you have trouble finding words. For a long time I was at a loss as to how to let you all know.
Please know I’m not trying to make you sad or looking for pity. I just felt that you deserved to know. It really sucks to be going through this and I’m pissed off over what I’ve lost. But it’s not contagious and it won’t kill me.
I still care about all of you and I hope someday soon there will be a magic pill to make it all go away or at least I’ll feel well enough to catch up with you.
Be well,
Lesly
Hello friends,
I hope you’re all enjoying what’s left of the summer.
I’m writing to you all at once because there is something I need to address. A few of you are already aware of it but you may not have seen me or heard from me for a long time. I need you to know it’s not because I don’t like you or I don’t want to go to your fun parties or talk to you. It’s because I’ve been ill.
I have Fibromyalgia. I’ve had it for about six years but the symptoms have become really severe over the past two and I was only diagnosed last year. This was after years of trying to get doctors to listen.
I didn’t want to make this letter too long. This link explains what fibromyalgia is and what people with fibro have to deal with better than I can right now. Not everything written applies to me but most of it does. Please take a moment to read it.
http://thepathbeyond.com/blog/?p=17
I will briefly explain what this means for me personally.
I get “fibro fog,” which makes concentrating and remembering things extremely difficult. Sometimes I have trouble remembering simple words. This is very bad, especially if you’re a writer. So I can’t write like I used to.
I also can’t do yoga like I used to or do cardio kickboxing because overexertion makes my condition worse.
Being in pain all the time really saps your energy, to the point where simple chores like vacuuming or going to the doctor can wear me out. Sometimes I’m too exhausted to speak.
This makes it hard to socialize or do things like attend demonstrations. For me, this is the hardest part of fibro. I miss out on a lot of great stuff and often it’s like I have no life at all.
I don’t look sick. I look tired a lot, sometimes I can’t hide the dark circles under my eyes but otherwise fibromyalgia is what’s referred to as an “invisible illness,” which makes it hard to be taken seriously.
Since I was diagnosed I’ve been slowly learning how to navigate this illness and managing it to the best of my ability. I’ve had to stop working and go on ODSP because I simply can’t work anymore. I’m currently attending a fibro group at Toronto Rehab, which is helping me deal with things.
I’m sorry I didn’t let you all know sooner but it’s been hard to deal with and it’s even harder to explain, especially when you have trouble finding words. For a long time I was at a loss as to how to let you all know.
Please know I’m not trying to make you sad or looking for pity. I just felt that you deserved to know. It really sucks to be going through this and I’m pissed off over what I’ve lost. But it’s not contagious and it won’t kill me.
I still care about all of you and I hope someday soon there will be a magic pill to make it all go away or at least I’ll feel well enough to catch up with you.
Be well,
Lesly
